Monday, July 13, 2009

Day 7: transferred to ward B7

When I arrived today Simon looked really good although he hadn't slept all night. I think he may be afraid to sleep at night or maybe his body is just out of sync. He had torn out his nasal gastric tube for the fourth time, and this time, thankfully the doctor opted to try him without it. He had a visit from the speech therapist to assess many things, including his ability to swallow. If he can swallow then the nasal gastric tube can stay out. Simon not only swallowed, he gobbled a cup full of ice chips, four spoons of chocolate mousse, and later a three course meal of pureed meat and veg. He was starving! There is still some trouble with swallowing, water makes him gag, but this is an unbelievable start. The speech therapist also asked him to count to ten, he managed to count to five and all of the words were recognisable. This afternoon he was transferred to ward B7 which is a specialist stroke ward. He is in a room with three others, and was initially a bit confused by that. It can be stressful moving between wards. The specialist on sleep apnoiea came to see him (a respiratory consultant), and studied his breathing for about fifteen minutes. He reckoned that Simon was experiencing around three unusual patterns per minute, and he explained that each of these episodes causes the blood pressure to rise. If he has had this problem for a long time (he has always snored as long as I have known him) then it was a clear indicator of potential stroke. This is something that people, especially wives/girlfriends should be aware of.
The respiratory consultant has ordered a sleep study on him, and he was wired up for that this afternoon. They take all his essential readings while he is asleep and this is analysed for pattern and non-pattern. The consultant will then be able to tell us how we can best deal with this.
I took the laptop in and showed him the pictures from ICICTE also the picture of you all sending him a get well message. I couldn't get the movie to play, but he seemed to know what was going on.
Simon asked for his book, and wanted to hold it himself. I read over his shoulder with my finger underneath the words. We managed about two paragraphs before he drifted off.
Most popular today were the Pooh and Piglet soft toys that Asher and Mitch gave us as a wedding present. He had one in each hand as I left. He has some feeling in his right arm because he winced when someone took blood from him. I asked if it had hurt, he said yes, so I asked him to squeeze the nurses hand with his right. She said that she felt slight pressure. Later he gave Piglet a good squeeze. You cannot imagine how excited I am to see all of this unfolding. He has made so much progress in the space of one week.
Now he is on the proper stroke ward with all of the specialists, and specialist nursing, so we will be able to talk them about his care plan. My friend Helen, who runs the Hampstead hospital, came in again today and had a few words with his new ward sister. It is good to have this kind of support from inside the medical system. We aim to get him the best consultant.
It is possible that he may be able to have a shower soon and this will make him feel so good. To go without a shower or bath for one day would be unthinkable for Simon.
My sister, Margaret, and his mum, Shirley were both with me today to witness this progress. We felt like dancing.

Marian x

9 comments:

  1. Marian and Simon -
    That's awesome news, discovering that Simon is making all this progress, particularly with eating and swallowing, counting and communicating with clarity and getting some feeling back in his affected arm. And, it's great news to discover he's now been moved to the Stroke Ward, meaning he's really on the road to his recovery. You'll be doing the dance routine from Tina and Ike Turner's Nutbush City Limits soon, at this rate.
    Make sure you tell Simon from me, that he's a real trooper, and Dad probably won't stand a chance of nicking his extensive music collection anytime soon.

    Lots love Melanie + Penny xxxxxxxxxxxxxxxx

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  2. Dear M, that is such great news. And, you know that if he squeezin his lttle piglet with his right hand, he is very soon going to want his special personal physio-therapy from ya!!!

    xx

    asher n Mitch

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  3. Fantastic progress, well done Simon!!

    Helen x

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  4. You have one hell of a strong and determined man for a husband! We are so pleased with the fight he is putting up, what a guy! Tell him well done from all of us in Bonnie Scotland.
    Love
    David xx

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  5. Hi Marian

    We've never met but I worked as part of the Sussex Direct team with Simon when he was at the University of Sussex.

    I was very shocked to hear about Simon's stroke. Do please tell Simon that I'm thinking of him, sending him love and good vibes. If he's in the mood to think about music, maybe mention I suggested Gillian Welch as a listening option!

    Marian, I can't thank you enough for taking the time to write this blog so that all of us who are so far away from Simon and you can feel connected to you both. You are doing amazing stuff in your care for Simon.

    Love and very best wishes to you and Simon from the Sussex Direct team

    Carol xx

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  6. Hi Marian
    You don't know me either. I first met Simon 20 years ago, when we were both doing our first degrees at Sussex - seems like yesterday!

    I have a pic of him posing in a leather jacket, skinny as a rake, outside Falmer Bar.. I look a bit different these days too......

    Please let Simon know I am thinking about him. He always was a determined sod, so I know not much will stand in his way of getting better. My fingers and toes are crossed that the journey is as smooth as it could be.

    Take care,
    Sue (nee Lilley)

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  7. This is such good news and I don't blame him for pulling out the nasal tube it must be horrible! So pleased that he can eat and that he is getting such good care. Tt's great that you are taking the trouble to do this blog too. You must be frazzled at the end of the day. Don't trust him with too many nurses!

    Best Wishes

    David

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  8. Dear Marian
    Moira has kept us up to date with Simons progress and glad to hear he is taking baby steps.
    My nan had a stroke 11 years ago and I can relate entirely to what you are going through - we are a close family and she moved in with us.

    Remember to take some time for yourself, that you know Simon best and trust in that, no matter what anyone else says.

    We are thinking of you all and wish him the best of recovery and a speedy one.

    If you need anything, please dont hesitate to ask.

    Take care and pass on our thoughts to Simon,

    Regards,
    Lauren Hoysted
    Phil Hoffmann Corporate Travel

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  9. how wicked is Simons progress huh? mum has been filling me with updates, and its amazing how far he has come in just a week. She also stated that he has a nice jaw line and the weight is dropping off him! Raina and myself are going out to pick a few bits up for him this afternoon, and Jamie and i will go and see Simon Thurs night for a while. It will be stuff raina will have carefully selected, so it could be and combo of noise and more noise. I shall make sure she picks something helpful out. If you fancy coming back down with us, let me know and we can swing by and grab you. I know you are there during the day, but if you felt like popping out for a bit and not having to deal with driving at night, the option is there. I shall buzz you a bit later on. So so very pleased with Simons progress. What a champ, he certainly is a fighter marian.
    Buzz you later on
    Rache xxx

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